Colburn-Keenan Foundation

Resources

Hemophilia

The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.

Established in 1948, the National Hemophilia Foundation is a non profit 501(c)3 organization with chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).

National Hemophilia Foundation (NHF)

The Hemophilia Federation of America (HFA) is a non-profit, 501(c)3 organization incorporated in the spring of 1994 to address a perceived gap in services due to evolving needs of the blood clotting disorders community. We serve as a consumer advocate for safer blood products, affordable and obtainable health insurance coverage, and a better quality of life for all persons with bleeding disorders.

HFA maintains a strong presence in Washington. We utilize the services of the Health and Medicine Counsel of Washington (HMCW), a well established lobbying firm, to insure constant communication of the blood clotting disorders community’s specific concerns with federal agencies and Congress. HFA officers and staff testify before the FDA, CDC, on Capitol Hill and throughout the country to promote blood safety and availability and to address reimbursement, lifetime caps, and other community issues.

Hemophilia Federation of America (HFA)

The World Federation of Hemophilia (WFH) is an international not-for-profit organization dedicated to improving the lives of people with hemophilia and related bleeding disorders.

Since it was established in 1963, the WFH has grown into a truly global network with member organizations in more than 100 countries and official recognition from the World Health Organization. We work in partnership with healthcare professionals and people with hemophilia, governments and regulators, industry and foundations, to improve hemophilia care throughout the world.

World Federation of Hemophilia (WHF)

HIV/AIDS

Camp Heartland believes that all children deserve a welcoming place within our world. A national nonprofit, Camp Heartland enhances the lives of children impacted by HIV/AIDS and other suffering youth through year-round support, advocacy, recreational programs and community educational efforts.

Founded in 1993, Camp Heartland has created and implemented model programs for children with HIV/AIDS, grieving children, inner-city children living in poverty, foster children and other at-risk, suffering and marginalized youth. Through our year-round facility in northern Minnesota and rented facility in southern California, Camp Heartland is able to serve thousands of children each year.

Camp Heartland

The Centers for Disease Control and Prevention (CDC) is one of the 13 major operating components of the Department of Health and Human Services (HHS), which is the principal agency in the United States government for protecting the health and safety of all Americans and for providing essential human services, especially for those people who are least able to help themselves.

Since it was founded in 1946 to help control malaria, CDC has remained at the forefront of public health efforts to prevent and control infectious and chronic diseases, injuries, workplace hazards, disabilities, and environmental health threats. Today, CDC is globally recognized for conducting research and investigations and for its action oriented approach. CDC applies research and findings to improve people’s daily lives and responds to health emergencies—something that distinguishes CDC from its peer agencies.

CDC is committed to achieving true improvements in people’s health. To do this, the agency is defining specific health impact goals to prioritize and focus its work and investments and measure progress.

Center for Disease Control and Prevention (CDC)

Everything UNICEF does is guided by the principles in the Convention on the Rights of the Child, which recognizes that children have the right to develop physically, mentally and socially to their fullest potential and to express opinions freely. HIV/AIDS is one of UNICEF’s primary concerns because the epidemic is undermining so many of these basic child rights. UNICEF is one of the key UN agencies in the fight against HIV.

UNICEF is mobilizing financial resources and helping persuade governments to put HIV/AIDS at the top of their agendas and to treat the epidemic as a national emergency. UNICEF is working with government, non-profit organizations and religious groups, youth organizations and many other partners in 155 countries around the world to combat the epidemic.

UNICEF

Project Inform has been at the frontlines in the fight against HIV/AIDS since 1985—when reliable information about the disease and its treatment was nearly impossible to obtain. Project Inform is a national, nonprofit, community-based organization working to end the AIDS epidemic. Our mission is to:

Inform people living with HIV, their caregivers, and their healthcare and service providers about the treatment and monitoring of HIV disease;
Advocate to facilitate research towards a cure and appropriate policies, legislation and funding for HIV research, treatment and care; and
Inspire people to make informed choices, take effective action in the fight against HIV and choose hope over despair.

Project Inform

POZ Magazine

Cancer

The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

American Cancer Society

The National Cancer Institute (NCI) is a component of the National Institutes of Health (NIH), one of eight agencies that compose the Public Health Service (PHS) in the Department of Health and Human Services (DHHS). The NCI, established under the National Cancer Act of 1937, is the Federal Government’s principal agency for cancer research and training. The National Cancer Act of 1971 broadened the scope and responsibilities of the NCI and created the National Cancer Program. Over the years, legislative amendments have maintained the NCI authorities and responsibilities and added new information dissemination mandates as well as a requirement to assess the incorporation of state-of-the-art cancer treatments into clinical practice.

National Cancer Institute

CancerCare is a national nonprofit organization whose mission is to provide free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs – including counseling, education, financial assistance and practical help – are provided by trained oncology social workers and are completely free of charge. Founded in 1944, CancerCare now provides individual help to more than 90,000 people each year, in addition to the 1.4 million people who gain information and resources from its website.

Cancer Care