Colburn-Keenan Foundation

Hemophilia

The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.

Established in 1948, the National Hemophilia Foundation is a non profit 501(c)3 organization with chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).

National Hemophilia Foundation (NHF)

The Hemophilia Federation of America (HFA) is a non-profit, 501(c)3 organization incorporated in the spring of 1994 to address a perceived gap in services due to evolving needs of the blood clotting disorders community. We serve as a consumer advocate for safer blood products, affordable and obtainable health insurance coverage, and a better quality of life for all persons with bleeding disorders.

HFA maintains a strong presence in Washington. We utilize the services of the Health and Medicine Counsel of Washington (HMCW), a well established lobbying firm, to insure constant communication of the blood clotting disorders community’s specific concerns with federal agencies and Congress. HFA officers and staff testify before the FDA, CDC, on Capitol Hill and throughout the country to promote blood safety and availability and to address reimbursement, lifetime caps, and other community issues.

Hemophilia Federation of America (HFA)

The World Federation of Hemophilia (WFH) is an international not-for-profit organization dedicated to improving the lives of people with hemophilia and related bleeding disorders.

Since it was established in 1963, the WFH has grown into a truly global network with member organizations in more than 100 countries and official recognition from the World Health Organization. We work in partnership with healthcare professionals and people with hemophilia, governments and regulators, industry and foundations, to improve hemophilia care throughout the world.

World Federation of Hemophilia (WHF)